Friday, November 30, 2012

What I'm learning about mold detox

I'm pushing through mold detox first so that my boyfriend will have the benefit of being able to reference my experience when he goes through it...

here's what I'm observing:

1) You really need to get up to 3-4 packs a day of CSM to feel the full benefits. I wasn't getting those benefits when taking 1 pack a day.

2) You absolutely need to have some SERIOUS inflammation control handy when going through this. Biocurcumin, Meriva curcumin (if you are not sensitive to soy), HIGH dose fish oil, Neptune Krill oil, and tart cherry extract are my favorites.

3) Even though many people recommend against eating fruit or sugar when dealing with mold, it has seemed to work well for me to eat a lot of low-sugar frozen BERRIES while going through this. You end up craving anthocyanins and any sort of antioxidants, and somehow these fruits are just perfect - easy enough to digest, low enough in glycemic index, and with a high nutrition-to-calorie ratio.

4) You absolutely want to have all other types of detox working well while going through mold detox. Here are the forms of detox I am using:
MTHFR support (400mcg Quatrefolic methyfolate from Doctor's Best, 1 Source naturals DMG per day, and Jarrow Methyl-B12)
Coffee enemas every other day with a very small amount of coffee (I am caffeine-sensitive)
Corn-free Allergy Vitamin C (from Twinlab) for glutathione support
Steam or infrared saunas every day if possible

5) It seems to work well for me to take supplemental minerals at the same time as toxin-binders or saunas, so that I don't even experience temporary drops in mineral levels, since even when the binders take away some minerals, they are added back in at the same time.

I wonder if microbes are sensitive to CHANGES in mineral levels (in fact, I"m almost sure they are) - the same way that mold seems to be sensitive to changes in humidity, and the worst competition occurs when the levels go up or down suddenly and the microbial balance shifts and the microbes have to compete for minerals. Either way it seems to be better to keep the levels relatively constant rather than having huge ups and downs.

6) Good to have a tv show picked out on Netflix to run to any time you get irritable or overwhelmed or just to escape to for hours a day, since detox is really intense.

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Thursday, November 29, 2012

Major detox

The detox is finally going well and I'm not irritable, which is great. 

However, god, it's just intense. It's going so fast that it's hard to keep up with it.

I've had to go up to 4 Cholestyramine packets today to keep up with what's coming out of my cells. Maybe it's coming out faster because I am on better anti-inflammatories (more turmeric, biocurcumin, and tart cherry). Thank god it's coming out without causing too much inflammation. 

So this evening, after the fourth Cholestyramine, I was craving mangoes, always a sign to me that I need Vitamin C. 

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Tuesday, November 27, 2012

Beautiful feelings are triggers, don't want to lose what's rare

Here's what I notice with both trauma processing and detoxing and anything else that improves my life in a new way --

As soon as I get a taste of how things CAN be, even for 10 seconds, my body quickly sees that my normal life is very difficult and unpleasant. I can see how in contrast to what's possible, and also in contrast to most other people, I have been dealing with insane terror, freezing-up, discomfort, lack of pleasure, lack of a sense of being an individual, extremely difficult rules to follow (or else I get hurt - getting hurt easily during Lyme), shame, being different, etc.

Then, after a few of those tastes, I become really really really upset if I have to go back to "normal life" after that. If something puts me back into the trauma state or disrupts my run of feeling good and not getting injured.

That happened to me tonight. I had about 30 seconds of this wonderful feeling I haven't had since I was a kid, and that I seriously thought until now was only available to children for hormonal reasons... (I have interpreted much of the changes of illness to be natural changes in aging from childhood to one's 20s). v I went outside to throw some trash out, and it was beautiful, still, after snowing all day. (no snow stuck on the ground though, to round out the picture). Still fairly warm. We just put Christmas lights out. A wonderful picture.

Then I came back in and was eating some anti-inflammatory foods until I got a call from my mom and took it even though I knew it was probably a bad idea (sometimes I can sense when I'm likely to get thrown off by calls, if I'm feeling sensitive during detox) it threw me off (I'm sensitive because of recently starting on A-BART Byron White formula for Bartonella) and I ended up raising my voice and getting extremely inflamed and going straight back to the "dungeon," back to the shame and physical vulnerability...

I got so so so upset about this and then freaked out about what I had lost, about how after taking seemingly 10 years to finally regain that good feeling, I lost it again after just a few minutes over something stupid that I had a sense I shouldn't do.

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I can see now that it makes sense that one would be really emotional and devastated about losing something so precious when it is so rare in one's life.

I was just the same way when going through my recent bout of trauma processing. Sometimes I'd get to a state of calm I'd never experienced before in my life. And then my boyfriend would move near me and I'd get worried about getting bumped and getting hurt and I'd clamp up again. Felt like 20-something years of work erased, but mostly, like a huge loss.

I now see what a dramatic effect it has on your life, your level of methylation, detox, heavy metals, etc.... god, what a difference. It's very clear that these things can affect one's quality of experience, say, in the case of autism, but we don't connect the dots and realize that all people are somewhere on a spectrum from more to less conscious as far as biological conditions go. (Spiritual and personal and other levels could be on separate axes.)

It's almost like life is a different thing to me now. I see it as far more valuable than I used to see it. In the past it seemed like something to be endured, but now I am starting to see it as a wonderful and ongoing mystery, and just being here to experience it is enough reward in itself.

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I guess my conclusion is, I'm glad to have experienced this, if only for the novelty. I'd say the same thing about trauma processing and getting out of a traumatized state. It's worth doing if only for the novelty. Yes it feels great and better but the main thing I appreciate and remember about it is the extreme degree of novelty.

People with birth trauma shouldn't die without seeing what else is possible.

It's ironic and very full-circle-ish that just as I wriggle out of this myself, someone I know is about to have a baby at high risk for sensory processing disorder and trauma for genetic reasons and because it is being induced (risk for birth trauma).... Like many people who have to learn about health due to chronic issues, I feel like I can predict the future somewhat. I knew the baby would be induced (people with poor mitochondrial function and type II hypothyroidism tend to have delayed births, my brother and I were two weeks late), I knew it would be induced, and now I would not be surprised if it has colic and sensory processing disorder. At least I'll be able to tell them where to go for help if that turns out to be the case.

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Some of the best trauma books

Trauma is a huge, huge part of life in this country but very few people recognize the extent to which we are affected by it. Therapists are starting to catch on and treat it but I'm not sure they have the kinks worked out yet. Proceeding in this, it's important to have good knowledge and to inform yourself.

I wanted to post some of the books I'd recommend for a holistic self-approach to trauma.

Waking the Tiger 
A good introduction to the science and what you are dealing with from an animal/biological perspective. Perhaps the best overall perspective I have seen, and important for seeing this as the sort of evolved biological response it is, and not getting carried away thinking it is simply emotional or that it fits into our modern view of ourselves as separate from nature



In an Unspoken Voice
If you want more depth



The Revolutionary Trauma Release Process



The PTSD Breakthrough
Goes into nutrition and brain healing and detoxification. Great to see a book addressing the biological side of trauma as well, not just the emotional and autonomic nervous system/trembling/Sensory Experiencing



Methyl Magic
This is what's being left out of lots of trauma programs-- adequate attention to the neurological building blocks, like neurotransmitters and myelination. Shouldn't we be thinking about optimizing brain health from the building blocks when embarking on such a major plan of unleashing potentially neurotoxic pain (yes PTSD and trauma can involve neurotoxicity) and when trying to have the nervous system regrow in a new pattern?



Building Wellness with DMG
A cheaper book on methylation from the Foodscience of Vermont doctor



Changing the Course of Autism
We can learn a lot from what people have figured out for other health conditions. As a reviewer says, "This book is NOT only for parents with autistic children. People who have "leaky gut" syndrome, and genetic defects associated with MTHFR NEED to get this book as a resource for understanding. Best description of leaky gut and C677 and T1298 I have found yet outside medical literature."

Healing Developmental Trauma
If you have developmental trauma like me



One Day at a Time in Al-Anon
The great peer recovery program in a book that you can read for a few minutes every day



Paths to Recovery in Al-Anon



Broken Toys, Broken Dreams
When you really feel ready to feel your childhood trauma. Haha wow. This book is intense and caused me to feel things in a way I never had, while giving me hope about my capability to feel and not live in denial/defense in general.




Write to me if you can think of any others!


Detox helping to create a savor-worthy life experience

I'm starting to feel that feeling I thought was just a consequence of teenage-hood -- that feeling that life is meaningful and exciting and a wonderful gift.

I look back at how I thought of life until recently and think, wow, I was severely underestimating it. Now I get it why people like life. It's sad to realize what a bad version of life I was living for many years.

What is it? It's a feeling of wanting to actually savor how you feel, feeling important, feeling like what you're experiencing is worthwhile, etc. I used to get this a lot in high school and early college before I was too fatigued.

It must be the detox and magnesium baths, finally getting endorphins and dopamine again. MTHFR methylation treatment, coffee enemas (which are much more intense when methylation is working properly), just continual detox from hour to hour.

What this makes me realize is that your experience of life has so much to do with the quality of your body and health, particularly your nervous system.

The things that have been hardest for me to handle have been those that are closest to the core of my information processing, namely sensory processing disorder (SPD) and tinnitus (ear ringing).

It makes me think that having a good life is more about looking within, and getting your nervous system and (dare we say it) consciousness in order, rather than about organizing things well on the outside. Or at least the organization on the outside is there is a prerequisite for being able to create health and peace on the inside.

If I can get this much benefit from getting my nervous system detoxified some, I can only imagine what would happen if I went into nonduality more and detoxified my belief systems about who I am or what reality is. (Somehow that reminds me of an analogy my mom would make - she is constantly talking to me about "purity" in a Catholic sense and likes to make health analogies).

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Monday, November 26, 2012

Suffering and nonduality - a perfect match!

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Work after Lyme - surprising challenges, and sensory therapy in prisons

I never would have expected it, but one of my biggest challenges at work after having Lyme is actually frustration and being testy/a little more irritable than other people, not fatigue.

We actually have a client who also has chronic Lyme and has a similar personality to me, so I was able to say in a meeting - you see? people with Lyme can have chronic low-level inflammation and they can be a little bit angry. If I'm ever like that, just know it's Lyme.

It's rough for me - I already have insecure attachment so I'm constantly worried that people no longer like me at work, and then to have these concerns about what people think of me if I get frustrated sometimes. I'm learning to be very cautious to control it, so it shouldn't be a problem anymore.

But yeah, always new challenges. To others who are starting work after having chronic inflammatory disease - do you have inflammation-related emotional challenges too?

You know, maybe this run-in with inflammation will actually help my career as well -- I am really interested in studying the causes of violence and might consider going to grad school to research it, ... there's a guy who works on this. It's really, really changed my view of people in prison or mental hospitals, going through rough things myself. I'd be interested in working on the use of sensory therapy for people like this who might have trouble regulating their nervous systems on their own - sensory help is really profound.

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Sunday, November 25, 2012

When you get better ... new problems!

When we are ill with chronic illness, the future seems like a fairy tale. Some day, we'll be better, and then everything will be great like it used to be!

But one thing I didn't plan for is that my personal responsibilities became much greater during the time when I had fatigue and was barely surviving, which is to say between maybe high school and late 20s.

So now, when I get much better, I wake up and get back to life and suddenly I have all this catching up to do! Career growth! All this stuff I have to learn about what to do at work! Catching up on fucking retirement! All these things I was not thinking about that nonetheless were creeping up on me while I was in hibernation.

I feel like I am behind by several years. It feels like I've switched generations slightly, where I fit in better with people who are 4 or more years younger than I am. I'm dating someone younger. It feels like his friends are at a similar lifestage to me. I got hired through an internship and feel at a similar stage as the other college-age interns.

It's like being Rip van Winkle.

So -- that's the great news. If you like challenges, and I do - recovery does not bring any lack of challenges! The next challenge is up there (just as challenging) with getting better in the first place, and it is catching up on the lost time/lost income/possible debt/etc.!

Here is a good site for catching up on financial learning!
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Saturday, November 24, 2012

Major detox from coffee enemas

We did coffee enemas for the first time today since getting on the MTHFR methylation protocol, and wow, it was intense.

Made SO much more glutathione than usual. It was so intense. Hours later we are still feeling stupid from chelating heavy metals with the glutathione.

Trying to keep eating antioxidants and fiber to help deal with this.

 It seems to be passing, and I have the following feeling: Like I climbed a very high fence, and now I can see the other side? Not there yet and there's a climb down, but at least I feel like I can see the other side.

There IS another side to chronic illness. Sometimes I get these feelings of recognizing that my body feels more like it used to feel. Back then, I wasn't thinking, oh, I have enough glutathione and minerals, but now when I get enough of those, I think, "Oh, I feel more like I used to feel."

 Chronic illness would be so much easier to understand if we walked around with visible indicators of our glutathione levels, methylation blocks, mineral and vitamin levels, etc.

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Can enjoy music again, endorphins

I've been actually enjoying music again, which reminds me of, gee, ten years ago?

It's been so long since I've felt this way from music. I feel like a teenager again.

 I think that because I developed fatigue as I got older, from maybe 13 to now, I assumed it was because of just getting older - I thought everyone lost that "spark" and enjoyment of anything.

 It just makes me sad when I get things back because then I realize what I was missing.

At least I am fixing this in my 20s and not much later.

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Thursday, November 22, 2012

Cheap, BPA-free bulk food on Amazon!

Grocery shopping isn't always easy when you are herxing, detoxing, etc. And we all like to keep our grocery costs down.

Since moving father away from the Whole Foods/Trader Joe's in my area, I've started getting more of my groceries online in bulk from amazon. I have Amazon prime, so the 2-day shipping is free. I mainly look for organic and BPA-free items.

Here are some of my favorites:

Eden Organic Extra-virgin olive oil pizza sauce:
http://amzn.to/RXySgP


Works great as a marinade for meats. I use it in my slow-cooker all the time. Also a good source of Vitamin C.

Farmer's Market Organic Pumpkin:
http://amzn.to/Ti2k3d


Great stuff, and a good source of Vitamin A. Lately I can actually feel my liver gurgle (a good sign) when I eat it. Nice to mix with cinnamon and stevia, or mix with broth for a soup. And curry powder. Really nice. Makes a good portion of a meal.

Kitchen sprouter for making your own sprouts:
http://amzn.to/Ti2veZ


Applesauce. Comes out to 50 cents a package which is a better rate than you normally get.


That's all for now! More as I figure out how to feed myself without taking a long trip to the grocery store!

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New video (getting my video blog going again!)

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Ultima Replenisher

This is what I've been using for electrolytes and mineral replacement during mold detox with Cholestyramine. A friend from the mold site recommended it. It's pretty good as electrolyte drinks go - no citric acid, no aspartame, and a pretty good balance of minerals. And the grape flavor tastes great!

If you get it through this link I get a portion for referrals:
Grape: http://amzn.to/WDwznz

Trust me, the grape flavor is actually good.
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Weird stuff happens during MTHFR detox, to both of us

Well, I've been having kind of a crap time with the detox from the methylation, I think because I am also getting exposed to new carpet fumes. The problem is worse when I'm in the apartment.

I might have one of the BH4 mutations. It seems that taking MSM really clears out whatever builds up in me from the methylation issues. It's funny that I do well with MSM but poorly with sulfate (don't like Epsom salts - magnesium sulfate).

I can't wait to get my actual genetic test results (I jumped into this before getting those). My sample has made it to 23andme and I should get the results soon.

Today I took a long bath with the Zechstein magnesium chloride flakes (from Swanson) and then added bentonite clay from Living Clay. Really helped to clean me out and help me feel better. Now that I'm back in the main part of the apartment I'm starting to feel bad again.

Really sucks that the landlord had to put in EXTREMELY TOXIC CARPETS right when we were going through this MTHFR detox. The carpets are really vile. I can't even check my mail or wash clothes downstairs anymore since the fumes are so bad and they cling to my clothes when I go down there.

I am at the point in this detox where I almost need to pay full attention to it during the day. I haven't been able to do that because I've been working way overtime for a few weeks, and then attending to my cash flow (made budgets on mint.com, started my own Roth IRA because my employer doesn't offer a 401K, doing more with Google Adsense and youtube), and detox has been neglected. But it's just what I need to work on.

When I am really detoxing, I get to where my body just asks for one thing after another. It's assembling all the pieces and it craves whatever piece is missing - whether it be magnesium, peas, kale, chicken, a bentonite bath, Cholestyramine, fruit, B12, etc. You know when this is going on because your cravings are INTENSE!

My boyfriend and I both experience this, where for a while we just feel like "I'm going to have to eat constantly for a few hours, whatever my body is craving." It's not so much about being hungry, since eating a lot at once wouldn't satisfy the need; it's more about needing almost a "nutrient IV," with slow, steady influx of nutrients from food. I think that's why the body asks for it to be inputted slowly and steadily over the course of a few hours, rather than in one big meal.

It's great going through this detox with someone else. Almost everything I've experienced, my boyfriend has experienced too. We seem to have practically identical genes. Even some of the weird things where my forehead and neck muscles contract, or where I feel an urge to move my head around in circles - my boyfriend gets those too. Haha I'm getting that now, where my forehead is contracting and I feel like pursing my lips. Weird, weird stuff happens when you are detoxing.

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Tuesday, November 20, 2012

Ok, the blog is back

Well, checking, but I think that finally the blog has been purged of my old posts that showed my name, so maybe this is safe again to post here!

So yeah, the fight continues. I've been doing a lot of methylation support lately which has been amazing. It has helped considerably with trauma processing.

I'm also going through mold detox, which is incredibly intense. Using cholestyramine.

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Guide to getting what you want from this blog

If you are a healthy person, you might like posts on: meaning of life, spirituality, nonduality, how health affects personality, weird ideas, criticism of medicine, ideas for better healthcare, feminism, thought experiments, personal growth.

If you have Lyme or invisible illness, you might like: explaining Lyme, Lyme disease, Lyme and family, explaining Lyme, illness and esteem, Lyme rage, emotional fatigue, illness and identity, discrimination against sick people, illness and young people.

If you are going through recovery from illness, read recovery after illness.

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